Autism Diagnosis

Autism Evaluation Process

April is National Autism Awareness Month, so I wanted to post about topics that relate to the autism aspects of my professional training and practice. One piece that is often not discussed is what actually goes into an autism diagnostic evaluation - for patient and practitioner alike.

I take the process of conducting an autism diagnostic evaluation very seriously. I try to give as much of myself as I can intellectually and emotionally in order to provide patients and families with guidance. My goal is to offer an evaluation that is compassionate, informative, and useful.

These are the measures I routinely use as part of an autism diagnostic evaluation:

  • Autism Diagnostic Observation Schedule - Second Edition (ADOS-2) - clinician-administered
  • Social Communication Questionnaire (SCQ) - caregiver report
  • Social Responsiveness Scale - Second Edition (SRS-2) - caregiver & self-report
  • Detailed Developmental History - caregiver report
  • Chart Review - pediatric medical records and educational services & assessment history

As outlined above, the diagnostic evaluation is not just me and the patient taking a prescribed set of tests. It is often what I learn in the life narrative that gives me the confidence to proceed with a clear diagnosis and treatment plan. In order to get this information and an accurate health history, I need to talk to caregivers and review pediatric records. This is true for my adult patients seeking a diagnosis as well. While it may seem like a long time ago, childhood behaviors as reported by caregivers give me a fuller picture of the patient's life. 

Beyond the ADOS, I provide anxiety, ADHD, and mood screening Instruments when applicable. An evaluation is so much more than a "Yes" or "No" stamp for a single diagnosis, as it represents a person and a plan to improve their lives based on the challenges they have had and face today.

The inspiration for my wanting to be Ever Better at conducting autism diagnostic evaluations comes from the families I've met along the way. Those who've talked with me about what went well and what they wished could've been different on the day they learned the diagnosis.

I've also found new inspiration and room for growth in working with adults who are seeking a diagnosis later in life. The feelings and dynamics of obtaining a first diagnosis as an adult are something I am learning to navigate with my clients, and I am honored to learn with them.

I am starting to get into a rhythm with scheduling diagnostic evaluations, and I hope to keep receiving referrals for individuals across the lifespan who wonder if they're on the spectrum. In private practice, I am afforded more flexibility in scheduling and administering tests. What this has meant is that patients can get an appointment more quickly and often during "outside of typical office hours" so they can get the answers and help they are seeking more smoothly. 

This April, I'm providing autism diagnostic evaluations on Saturday mornings. So far, I have enjoyed serving new patients in a timely manner - it is very fulfilling for me to get a call from a new referral and be able to serve them within a week or two of their inquiry. Providing answers and helping families better understand their loved ones is one of the most satisfying parts of my work, and I am grateful for the opportunity to serve patients and families in this way.

World Autism Day 2017

I really enjoy Christmas lights, so much so that I'm one-step removed from Walt Griswold.

While placing candle lights in the window back in November, I decided that I wanted to keep them up through April so that my family and I could Light it up Blue for World Autism Day.

I went to this website to buy candle lights, and I picked up standard bulbs at Home Depot.

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April 2 is World Autism Awareness Day, making this the 10th year of recognition on this day. Initially envisioned to bring greater awareness, the focus now broadens to include acceptance, advocacy, and greater autonomy for individuals on the autism spectrum and their families.

My goal this month is talk more with my kids about people with autism and their families. They each know I work with people with autism, but I want to deepen their understanding in a way that matches their developmental level. I think these shows might be a good start for them.

I'm going to light up my house blue for all of April, and I hope that people who see the lights on at night reflect and respond inclusively for individuals with autism and their families.

I'm a guest blogger

I had an opportunity to write a piece for The Scientific Parent, a website that asks professional experts in their fields to write about parenting topics by presenting scientific facts only, not opinions. They look for specialists in every field - who are also parents - to write in anunbiased, fact based article about their area of expertise. Each piece has an author bio at the end, and I can tell you they vetted me to make sure I fit the criteria to be a guest blogger. The goal of the site is to inform readers and parents on a relevant topic and allow them to draw their own fact-based conclusions to fit their life. The topic is very close to my heart and my work:

What is Autism & When Should Parents Seek A Diagnosis?

When writing this piece, I thought long and hard about every parent I've met who has a child, adolescent, or an adult with autism in their life. I tried to conjure up what I think would be the "key things" to think and do if autism becomes a part of someone's life. I thought first and foremost of Autism as Love. Here is an excerpt and a teaser if you'd like to read more

So, what is autism? That can be a difficult question to succinctly answer. Trying to define Autism feels a bit like trying to describe Love. It goes by a singular name, but its manifestations are so incredibly broad and varied that it defies simple distillation or description. I love my wife, I love my kids, I love my caregivers, and while I call what I feel for each “love,” each love is different. This is a little like what it’s like to define autism.

My very own ADOS kit has arrived!

When does an adult get the chance to spend a ton of money on kid’s toys?  I’ll tell you when…

When they open a private practice and are prepared for ADOS testing on their first day on July 11!

Let me start by first explaining what the ADOS actually is. The formal description is as follows:

The Autism Diagnostic Observation Schedule (ADOS) is a semi-structured assessment of communication, social interaction, and play (or imaginative use of materials) for individuals suspected of having autism or other pervasive developmental disorders.

In a nutshell, the ADOS is a series of structured play and conversation opportunities that aid in determining whether someone meets criteria for autism spectrum disorder. Now the diagnostic process has many more components to it (e.g., a caregiver interview, review of educational records), but getting down on the floor with kids and interacting with them face to face is one of my favorite aspects of my job. To accurately and comprehensively diagnosis Autism, researchers standardized the “play” components so that each person receives relatively similar social opportunities. This test arrives in the form of paperwork protocols and a giant box-o-toys. My new office mates at the practice on East Avenue were shocked when a huge, heavy cardboard box arrived in the waiting room one morning. The box was big enough to hold a love seat, specifically this one. I had a great time unpacking and organizing the contents. For those of you who know how much I love organizing and sorting things, this was its own reward...

These are the materials for the ADOS for  older children,   adolescents , and  adults .

These are the materials for the ADOS for older children, adolescents, and adults.

These are the materials for the ADOS for  toddlers and young children .

These are the materials for the ADOS for toddlers and young children.

I have been administering the ADOS for many years and received great clinical training on how to interpret the results of this assessment as part of my graduate and post-doctoral training. Today marks an important day for me because now I get my very own set of toys that I get to share with my patients and their families at both of my office locations.

One added bonus is the shipping box:

It was so huge I brought it home to make a play house – talk about a great investment. 

A new home for favorite toys. Note the  Dinotrux  "bad guys" figures stored in the back of a garbage truck.

A new home for favorite toys. Note the Dinotrux "bad guys" figures stored in the back of a garbage truck.